how2notdieblog

This list will continue to grow. If you happen to see language or terminology that doesn’t make sense right off, please comment on the post or send me an email. I’m happy to expand this as much as needed to ensure the information is as accessible as I can make it.

• Ehlers-Danlos Syndrome (EDS) – A group of genetic connective tissue disorders causing joint hypermobility, skin that bruises easily, and other systemic symptoms.
• Hypermobility Spectrum Disorder (HSD) – A condition related to EDS involving generalized joint laxity without meeting full EDS diagnostic criteria
• Mast Cell Activation / Mast Cell Disorders – Conditions where mast cells release inflammatory chemicals inappropriately, causing allergy-like symptoms without classic allergies.
• Allergic Response / Hypersensitivity – How the immune system overreacts to certain foods, medicines, or environmental triggers.
• Dermatographia – A skin condition where even light interaction with the skin from a nonabrasive surface can cause raised, red lines or welts; often mistaken for an allergic rash.
• Biopsy – A medical procedure where a small sample of tissue is removed and examined under a microscope to diagnose or test for pathogenicity.
• Endoscopy / Colonoscopy – Procedures using a camera to visualize internal organs (esophagus/stomach/colon) relevant to GI symptoms.
• Gastrointestinal (GI) – Relating to the digestive tract (stomach, intestines)
• Connective Tissue – The structural tissue that supports joints and organs, often discussed in EDS-related content.
• Excipients / Fillers / Inactive Ingredients – Chemicals in pills (binders, dyes, PEGs, etc.) that can trigger reactions in sensitive patients.
• FD&C Dyes – Synthetic color additives sometimes linked to hypersensitivity reactions. FD&C refers to approved for Food, Drug, and Cosmetic usage.
• Polyethylene Glycols (PEGs) – A common pharmaceutical excipient that can cause reactions in some individuals.
• Medical Gaslighting – When patients feel dismissed or their concerns are minimized by healthcare providers.
• Diagnostic Criteria – The formal checklist or set of rules doctors use to diagnose conditions.
• Zebra – Medical slang for a rare diagnosis; often used in rare disease communities.