I’m excited to share a small but meaningful update to my website. I’ve officially updated the EDS & HSD tab to outline the diagnostic criteria for all 13 subtypes of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder in one clear, accessible place.
I’ve seen how often people spend years searching for answers simply because reliable, consolidated information isn’t easy to find. This page was created to help bridge that gap- supporting patients as they prepare for appointments and offering clinicians a quick, organized reference when evaluating hypermobility= related conditions.
This resource is designed for:
Patients navigating uncomfortable symptoms, advocating for appropriate evaluation
Physicians and providers looking for a concise diagnostic overview (including sources for more information)
Medical students, nursing students, and other trainees learning about connective tissue disorders.
My hope is that this page is the first step towards providing resources that truly help shorten diagnostic delays, reduce confusion, and make conversations between patients and providers more productive.
You can explore the new resource here.
If you’re a clinician, patient, or advocate, I’d love to hear your thoughts on how this might be useful in your work or care. If you have any feedback on what you would find most helpful in a space like this, please don’t hesitate to reach out. I’d be honored to learn from your insight and consider adapting my site to best fit your needs.
Thank you for being part of our community!
Happy Friday,
Lauren
Hi friends! My name is Lauren. Thank you for being here and for making it this far. If you like what I’m doing here and want to support me/the blog – feel welcome to follow along on Instagram or TikTok– where we’re 6.4k strong and continuing to grow! You can also Buy Me a Cup of Coffee (isn’t that cool? I’m learning something new everyday!). Click around for some of the best resources I’ve found for food allergies, clinical trials, and drug info. If you have any questions, don’t hesitate to reach out. I’m also accepting patient stories, if anyone’s interested in sharing their rare disease experience or looking for a place to share their diagnostic odyssey or promote your blog/business – reach out to me, I’d love to elevate other rare voices. I’m so happy you’re here and happy you’re alive for another day. <3 XoXo, Lauren
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