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Continue reading →: Hi, I’m Lauren 👋Lauren, a chronic illness blogger and advocate, celebrates her community’s global reach and personal milestones.
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Continue reading →: One Mile at a Time
This May, I’m walking 26.2 miles over the course of the month to raise awareness for EDS & HSD. This marathon is my commitment to understanding and respecting my body’s unique challenges.
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Continue reading →: how2notdieblog to attend upcoming Mast Cell Disease Conference
Advancements in mast cell research will be highlighted at the 2026 AIM Physician and Investigator conference, May 15-17, Ann Arbor, Michigan.
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Continue reading →: Who Says… Life is What You Make ItLife doesn’t end at diagnosis.. for so many of us, this is when life is just beginning…even yet, so many of us could never have imagined just how our lives would be shaped by chronic illness.
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Continue reading →: P2: Flying Across the World to Meet My Team…Exhausted arrival. Embraced the opportunity to explore London with my mom, we got to see some of the most beautiful sights together!
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Continue reading →: The Credit for Caring ActHR 2036 / S 925 Happy Friday- Let’s talk about the Credit for Caring Act– if you’ve ever been a caregiver, you might have already heard of it and know why it matters. Caregiving for your loved ones? It’s unpaid. It’s exhausting. And somehow… it’s still invisible. Caregivers are spending…
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Continue reading →: Flying Across the World to Meet My Team…and Hoping They See Me, Not Just My Disabilities: Part 1 Off I go, across the Atlantic. Booked on American Airlines with a few layovers; armed with snacks, so many medications, my medical nutrition (formula), contingency plans, medical records to identify what’s medically necessary to travel with; and just enough…
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Continue reading →: The Sneaky Names Your Allergens Are Hiding BehindMilk Edition Hi friends, How are you this week? I hope you’re doing well. On the east coast, we’re finally getting a bit warmer outside. The cold front that came through the eastern seaboard the last few weeks has been unimaginably frosty. Wherever you’re located, I hope you’re happy, healthy,…
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Continue reading →: Medical Terminology Glossary
This list will continue to grow. If you happen to see language or terminology that doesn’t make sense right off, please comment on the post or send me an email. I’m happy to expand this as much as needed to ensure the information is as accessible as I can make…
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Continue reading →: New Resource Added: Diagnostic Criteria for All 13 EDS Subtypes and HSD
I’ve added a new resource outlining the diagnostic criteria for all 13 subtypes of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder in one clear, accessible place. This page was created to help bridge the gap between patients and providers by making reliable diagnostic information easier to find, reference, and use. So…
Hello,
I’m Lauren
Welcome to How2NotDie.com. I created this little corner of the internet to be a helpful resource to anyone who’s had questions about Ehlers Danlos, Mast Cells, or Connective Tissue. Whether for providers whom have questions about their patients or for patients that have felt dismissed, misunderstood, or not taken seriously by providers- I want this site to provide answers to questions and peace to chaos. Here, I invite you to join me in compiling, learning, and sharing all of the things that make zebras, well, zebras!
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Join the fun!
Hey friend, join the club! We’re a group of Epi Besties, AllerGeniuses, (I should patent those names) and fun-loving community members- PLUS- it’s free! (and you’ll get more of ME in your inbox…what are you waiting for?)