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Continue reading →: How2NotDie (on a budget)These five programs may provide savings beyond what your insurance covers.
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Continue reading →: Accessibility is OpportunityVirtual work and learning have been a game-changer for me, allowing me to travel and focus on my health without compromising my goals.
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Continue reading →: Before You Say “Happy Memorial Day”Memorial Day holds deep significance, varying greatly for each individual. It’s a time to honor service members and their families, acknowledging the sacrifices made.
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Continue reading →: The Internet has Become the Waiting Room Medicine Failed to BuildPatients increasingly rely on online platforms to fill gaps in medical understanding and support, shaping a new form of healthcare community.
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Continue reading →: There’s a conversation we need to have about lived experience…Rare disease patients, who have endured years of mistreatment and systemic barriers, possess invaluable firsthand knowledge about healthcare systems that often fail them. This lived expertise should be equally respected alongside clinical expertise to improve patient outcomes.
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Continue reading →: Complicated, the filmEhlers-Danlos syndromes can equate to a complex reality, as depicted in “Complicated”, which highlights the emotional, physical, and systemic challenges faced by those living with conditions like Ehlers-Danlos Syndrome and their loved ones. The film underscores the isolation and validation found in shared experiences and a call to action for…
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Continue reading →: I thought I was a bad friendFor years, I thought struggling to maintain friendships meant I was lazy, flaky, or simply bad at being a person. Looking back after receiving diagnoses for ME/CFS and post-viral illness, I now understand that what I was experiencing wasn’t a lack of care or effort, it was post-exertional malaise. This…
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Continue reading →: New on How2NotDie: Legislation + Advocacy 🏛️Advocacy is now accessible with a dedicated ‘Legislation’ tab for simplified healthcare understanding.
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Continue reading →: Hi, I’m Lauren 👋Lauren, a chronic illness blogger and advocate, celebrates her community’s global reach and personal milestones.
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Continue reading →: One Mile at a Time
This May, I’m walking 26.2 miles over the course of the month to raise awareness for EDS & HSD. This marathon is my commitment to understanding and respecting my body’s unique challenges.
Hello,
I’m Lauren
Welcome to How2NotDie.com. I created this little corner of the internet to be a helpful resource to anyone who’s had questions about Ehlers Danlos, Mast Cells, or Connective Tissue. Whether for providers whom have questions about their patients or for patients that have felt dismissed, misunderstood, or not taken seriously by providers- I want this site to provide answers to questions and peace to chaos. Here, I invite you to join me in compiling, learning, and sharing all of the things that make zebras, well, zebras!
Let’s connect
Join the fun!
Hey friend, join the club! We’re a group of Epi Besties, AllerGeniuses, (I should patent those names) and fun-loving community members- PLUS- it’s free! (and you’ll get more of ME in your inbox…what are you waiting for?)
