Happy Thursday friends! The weekend is right around the corner.
Website development is absolutely not in my arsenal of skills. I’ve watched YouTube videos, turned to the public library, even signed up for a mentorship program in hopes of developing some skills and learning the ins and outs- none of which have been all that successful. So this week, I said enough is enough and enlisted the help of every step by step manual I could find on how to better develop a WordPress site and made it freakin happen. So what’s changed? Well, I’ve been focused on making How2NotDie.com more user-friendly and inviting, so it’s easier for you to explore, find resources, and stay connected to the advocacy work happening here.
I’ve added helpful tabs to the top and bottom of each page to help navigate to where you’d like to explore next.
I’ve updated the layout, better organized my content, and made navigation smoother- all with my readers in mind.
As I continue to add more resources, I’d love to learn what our community is in need of right now. Feel free to reach out via DM, LinkedIn, email, or in the comments to share what you’d love to see covered. I want this community resource to be inspired by the community.
I’m also VERY excited to share that How2NotDie.com now has a dedicated Press Releases page now– a formal space for official statements, advocacy updates, and media-ready information. My first press release is live, and as we approach Rare Disease Week 2026 on Capitol Hill, this page will be the go-to spot for policy and legislative updates. I hope you’ll join me in checking it out and stopping by often to see new developments as my advocacy work continues to grow.
Thank you for being here. Have the best weekend!
Talk soon,
Lauren xx
Check out Press Releases here.
Hi friends! My name is Lauren. Thank you for being here and for making it this far. If you like what I’m doing here and want to support me/the blog – feel welcome to follow along on Instagram or TikTok– where we’re 5.8k strong and continuing to grow! You can also Buy Me a Cup of Coffee (isn’t that cool? I’m learning something new everyday!). Click around for some of the best resources I’ve found for food allergies, clinical trials, and drug info. If you have any questions, don’t hesitate to reach out. I’m also accepting patient stories, if anyone’s interested in sharing their rare disease experience or looking for a place to share their diagnostic odyssey or promote your blog/business – reach out to me, I’d love to elevate other rare voices. I’m so happy you’re here and happy you’re alive for another day. <3 XoXo, Lauren
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